Saturday, September 5, 2009

New photos of the babe!


Thought I'd throw a few newer pics up here for all to see. Up above, Nora loves to sit on the cat bed, thinking it's a tiny sofa for herself. It's so cute. She absolutely loves it.
We went to the track last weekend, and Nora and I played in the grass and took a walk in her stroller while Chris went for a run. Usually that entails Nora throwing her Spongebob out of the stroller 100 times thinking it's funny.
Here is Nora again w/Elmo, her other love:


Fall has been hinting of its return lately with slightly chillier mornings, and while we are sad to see summer go, we are looking forward to all things Fall - pumpkin picking, Halloween, and of course, Nora's 1st birthday.

She's growing so fast, turning into a bona fide toddler. It's fun.
Her top teeth are coming in. She's got two that have cut through and two more that are right there.



And of course she loves to play w/her toys!

Thursday, August 20, 2009

Where did the time go?

My baby is soon to be One.Year.Old.
I cannot believe it.
At this time last year, I was going to my childbirth classes, studying my Hypnobabies, and waiting impatiently to meet her.
Right now this minute, she's climbing the tv stand, chewing on a cinnamon raisin bagel, and wearing her favorite Spongebob T-shirt. A very active and beautiful 10.5 month old little person.

She's got a few "words" - Mama, Dada, Duck. Her version of "Cosette" (sounds like Ah-Sett). She just cut her 3rd tooth yesterday/today (hooray!).

I need to record memories more often, here and in her baby book. Time is just flying by. I actually started researching pre-schools and then had to stop myself b/c I realized I was ahead of myself again. It's time to just live and enjoy her, to sit back and let her become who she is meant to be.

I love being her mama.




Sunday, May 31, 2009

Summer is Near!

Sorry it's been so long since the last update. Life is truly going by so fast that by the time I have a second to get online another month (or two, lol) has gone by!!

Nora's going to be 8 months old this week and I still can't believe it.



She took off crawling a month ago, the same weekend she turned 7 months. She also cut her first tooth that weekend, much to our surprise. She cut her second tooth this month, around the 18th, so she now has two teeth (the bottom two middle ones).

She's crawling all.over.the.place and you can't keep her out of anything. It's definitely interesting. If it's too quiet somewhere I know I need to find her and see what she's gotten into!

She is also now saying "mama" - so much so that it seems to be all that comes out of her little mouth (as in, "mamamamamamamama" which never ends...) It's cute and sweet ... and tiring! She has gotten really good at clapping, too. Whenever she's excited she starts clapping and it's so cute!

She's doing better w/solids. She loves watermelon, asparagus, and broccoli the best. A few not-so-favorites are banana and avocado. She hates being fed anything on a spoon. The few times I've tried I've not been very successful!



Other than Nora News, not much is going on at the Suleski house. The cats are doing well as are Chris and I. We are enjoying the nicer weather and getting outdoors more often. We are working on our house little by little. We started cleaning out the upstairs with plans to turn it into an office type room, and we also plan to build a patio out back with pavers and install a sliding glass door in the breezeway. Hopefully we can finish these projects by the end of summer.

Friday, April 3, 2009

Six months and solid!



Nora has turned six months old! We can't believe it's been so long already, seems like only yesterday Carrie was pregnant with her.

With her six month birthday, we've started giving Nora some solid foods to figure out how to eat. Aside from a few tastes of apple earlier in the week, on her birthday she got to hold and eat sweet potatoes.

It went surprisingly well as seen in the pictures. She understood to get the pieces to her mouth and managed to bite off and swallow some of them. She was incredibly excited to be able to do this and it was quite fun to watch. This weekend we'll try some bananas!

Thursday, February 26, 2009

Our Growing Girl...

So, I haven't updated for awhile about Nora, so here goes!

I've been working part time since the end of January, working only 3 days a week so I can spend more time at home with my little munchkin. It has been working out great. For those 3 days, she gets to hang out with Grandma and her uncles, so she has the best care possible while Mama is at work! Everyone has a great time while she is there!

Nora is sleeping pretty well at night. She goes to bed relatively easily (most nights) by nursing to sleep after bathtime. She usually drifts off by 9:30 pm. She wakes only 2-3 times during the night to nurse, and gets up in the morning around 7:30 or 8 am. On days we go to Grandma's we try to get her up around quarter to 8 so we all have time to get ready and out the door.

Bathtime has become much more fun. She has all but outgrown her little seat and refuses to lean back in it b/c she wants to be upright or on her belly "swimming"! She loves to kick and swim and chase her bath toys!




Out of the bath, she is a pro at rolling over from her back to her belly! Almost as soon as you set her down, she flips over and starts playing. She has a few favorite toys (a little frog, a pink and white striped cat to name a few) and looks for them when she starts playing! If we hand her the wrong toy, she definitely lets us know by tossing it to the side until we give her the right one! She knows what she wants and is very determined to get it! Although, lately, she's more interested in playing with empty water bottles or trail mix containers.



She is definitely starting to get more interested in what Mama and Daddy are eating, and tries to grab our plates or our spoons and forks. It's so great to see these changes, and watch her develop and learn. She is still 100% breastfed for now and will be for a while longer. We will start offering her solids after she is 6 months old, starting with soft fruits (like avocados or bananas) and cooked vegetables. We aren't planning on feeding her baby cereal at all, but instead offering natural fruits, vegetables, and other foods that she can feed herself. This concept of self-feeding and baby-led weaning is something I've done quite a bit of reading about, and Chris and I feel it is the best for her and makes the most sense.

She is wearing mostly 9 month sized clothes (some 6-9's) and weighs (according to our scale) just over 18 lbs! She will be 5 months old in just a few days, and we honestly cannot believe how fast the time is going by and how quickly she is growing. At the same time, we love each stage as she grows, learns, and interacts with us more!

Now as Spring draws closer we are really looking forward to playing outdoors, going to the park with her and taking more walks. Winter has been long and cold and we are READY to move daytime outside!

Monday, February 2, 2009

Why Homebirth?

I was perusing the homebirth forum on Mothering.com, where I posted often during my pregnancy and even more often now that Nora is here, and came across this gem.

She said it was ok to repost it, and I'm so glad she is willing to share. If anyone wants to stop by her personal blog, here is a link:

http://raving-liberal.livejournal.com/826262.html


If you have a few minutes, please take the time to read. You may learn something and who knows, you may change your mind and decide to homebirth when/if you have your own babies...

*****

When hearing the news that I had my last baby at home and am planning to have this one at home as well, the first response from most people is, "You're so brave."

This has to be one of the most irritating things that people say to homebirthers. The implication is that birth is dangerous and that we are willing to take on a tremendous risk to do it anywhere but a hospital. It negates the research and planning that we've done to come to this decision. It makes the choice about balls, not brains. After all, homebirth is "dangerous." Hospital birth is "safe." Therefore, it must be bravado alone that would lead a woman to choosing such an option. Right?

In 2003, over 20% of women had their labors induced, with a rate closer to 40% in many hospitals, while that rate should not exceed 10% (and has remained at 10% in most industrialized nations). Inductions are approximately 5 times more likely among planned hospital births than planned homebirths. An 1999 American Journal of Obstetrics and Gynecology "Green Journal" review of 7000 inductions found that 3 out of 4 of the inductions were not medically necessary. Inductions are performed unnecessarily for estimated size of the baby (too large or too small), going past the estimated due date, amniotic fluid levels that are low but not critically low (correctable in nearly all cases by rehydration of the mother), rupture of membranes without immediate start of labor, the mother being dilated/effaced but not in active labor, or scheduling reasons on the part of the mother or care provider. Approximately 40-50% of inductions fail (depending on the induction method used and the mother's Bishop score), and most failed inductions end in cesarean section. Inductions increase labor pain and length, and create, among other problems, an increased risk of fetal distress, uterine rupture, and cesarean section.

But homebirth is "dangerous." Hospital birth is "safe."

Over 30% of women in the US have cesarean sections, while overwhelming research has led the World Health Organization to set an ideal standard rate of cesarean sections at 10-12%, with 15% being the rate where more harm is being done instead of good. Cesareans are performed at a similar rate across all risk groups, low to high. The cesarean rate for planned births at home or in an independent birthing center is approximately 4%. Cesarean sections increase the likelihood of maternal death by as much as 4 times, and have other immediate and long-term heath risks for mothers that include, but are not limited to, infection, bowel or bladder perforation, hysterectomy, future infertility, and increased risk of uterine rupture for future pregnancies. Risks for the baby include respiratory distress, fetal injury, prematurity (if result of schedule section or failed induction), and breastfeeding difficulties. Four of the greatest causes for the increase in cesarean section are overuse of interventions during labor, concern for malpractice/liability on the part of care providers, failed labor inductions, and "failure to progress" (labor not progressing fast enough or regularly enough for care providers).

But homebirth is "dangerous" and hospital birth is "safe."

The ACOG and AMA have both come out against homebirthing, calling it a dangerous trend and referring to it as a "fashionable, trendy, [...] the latest cause célèbre," and they paint a horrible picture of complications arising in low-risk pregnancies with no warning that cannot be handled anywhere but the hospital. Despite that, the most thorough study ever done on homebirth safety, Kenneth C Johnson and Betty-Anne Daviss's Outcomes of planned home births with certified professional midwives: large prospective study in North America, BMJ 2005;330:1416 (18 June), found that the outcomes of planned homebirths for low risk mothers were the same as the outcomes of planned hospital births for low risk mothers, with a significantly lower incident of interventions in the homebirth group. The Lewis Mehl Study of home and hospital births, which matched couples in each group for age, parity, education, race, and pregnancy/birth risk factors, found the hospital group had 9 times the rate of episiotomies and tearing, 3 times the cesarean rate, 6 times the fetal distress, 2 times the use of oxytocin for induction/augmentation, 9 times the use of analgesia/anesthesia, 5 times the rate of maternal blood pressure increase, 3 times the rate of maternal hemorrhage, 4 times the rate of infection, 20 times the rate of forceps use, and 30 times the rate of birth injuries (including skull fractures and nerve damage). Breastfeeding success rates are higher and postpartum depression rates are lower for planned homebirths.

But homebirth is "dangerous" and hospital birth is "safe."

The United States spends more per pregnancy/birth than any other country, the vast majority of women in the US give birth in hospitals, and yet the US's maternal death rate is the worst among 28 industrialized nations and the neonatal mortality rate is the second worst. The Netherlands, where 36% of babies are born at home, has lower maternal and neonatal mortality rates than the US. Denmark, where all women have access to the option for a safe and legal home birth, has one of the lowest maternal and neonatal mortality rates.

But homebirth is "dangerous," hospital birth is "safe," and Brutus is an honorable man.

I didn't choose a homebirth because I am brave. Bravery has little to do with it. If anything, I believe women who choose to give birth in US hospitals are the brave ones, because knowing what I know about our technocratic obstetrical system, I can't imagine voluntarily choosing an obstetrician and a hospital for anything but absolute medical necessity. My decision to homebirth wasn't made in a void, but based upon years of research. I wonder how much research the average woman puts into her hospital birth? Considering how many times I've heard someone say "I'm glad I was in the hospital because..." and then given as her reason a non-emergent situation (such as fetal size or nuchal cords), I'd say not that much.

Call me stubborn, because I wasn't willing to accept out of hand the culturally held belief that hospitals are safer. Call me an idealist, because I believe that birth can be a positive, safe, and empowering experience for child and mother. Call me a nonconformist, because I choose to birth at home in defiance of a powerful technocratic system. Call me outspoken, because I can't keep my mouth shut when I hear about yet another iatrogenic birth calamity. Call me a "birth nazi," because I believe it's the right and responsibility of every woman to educate herself about birth and take ownership of her birth experience.

But brave? Don't call me brave. "Brave" has nothing to do with it.

Wednesday, January 28, 2009

Rollin'

Well these breakthroughs sure seem to come in bursts. Over the weekend, we noticed Nora intently looking at her fingers and touching them together, then later that day she was throwing her legs up and grabbing them (at least tried to grab them).
Now she's rolling over! Last night we saw her roll from back to belly for the first time, and today over Grandma's house she was rolling back and forth, and even started scooting backwards.

Saturday, January 24, 2009

So, it wasn't a tooth...Oops.

So, I feel kind of dumb, but I took Nora to the ped Thursday night for her 3 month checkup. Well, the ped saw what I saw poking through her gums, and said she sees them often - and lots of 1st time parents think it's a tooth - but it's actually some kind of a cyst. It's hard, white and jutting through her gum, but it isn't a tooth. Harmless and very common. It should go away on its own. Oh well! I thought it was REALLY early for her to be cutting teeth anyway. So, I'm kind of embarrassed that I thought it was a tooth, but I chalk it up to never having seen a baby cut a tooth before.

But she is definitely teething. The ped says she sees buds in there ready to come through in another month or so. Yay for fussy babies!

Oh - and she weighs 15 lbs 15 oz and is 26 inches long! My little chunker! 95th percentile, w00t!

Here are some photos to tide you all over!

Gearing up for the cold!



Our big girl - so sleepy!




Beautiful!



Hello!


Happy girl!




Sunday, January 18, 2009

We knew it...

After a very fussy day, and a few really hard weeks, Chris and I finally saw a tooth peeking through Nora's bottom gums today! We can't believe she is already cutting a tooth! Our little girl is certainly hitting her milestones quickly!

Tuesday, December 30, 2008

Silly Giggly Girl!

So, we haven't updated in awhile and I thought I'd just jump on here to say a few words. We had a very happy Christmas with Nora! We hope you all had fun hanging out with us and with her!

Nora is going to be 3 months old on Friday. Where did the time go? Sometimes I feel like I've had no time to spend with her at all, that all of this time so far has been spent struggling to figure her out. Now that she's growing, giggling, and interacting with us more, I feel like she's becoming a little girl instead of a newborn. I want to spend every minute with her!

She's gotten to be an incredibly silly little girl. Her sense of humor and personality are really starting to come through! She often has giggle fits and makes silly faces. Here is one of her favorite faces to make:



We'll update again soon! Promise!

Sunday, December 7, 2008

Almost Christmas

It's been quite a while since our last update. Everything's going very well with Nora. She had her first vaccine at her last doctor's appointment, just this past Tuesday. She received only the Daptacel DTaP shot this visit and will probably be getting the RotaTeq rotavirus vaccine next week. We wanted to separate them so if she had any adverse reactions we could isolate the cause to a specific one.

She's up to 12 lbs pound now and is 23" long! This puts her at the 75th percentile for height (is it length until she can walk?) and weight.

Nora has been doing a lot of babble talking lately, she has moods where she'll throw a fit until we put her onto her back and let her just talk to us. She's holding her head up extremely well and has been sucking a lot on her fist, but hasn't yet discovered her thumb.

Aside from that, things are finally starting to settle down around here. After our loss of Leeloo, unfortunately things got worse before getting better. My grandmother (my mother's mother, and the last remaining of my grandparents) passed away a little over two weeks ago. She had been having heart problems for the past year, had a valve ballooning procedure a few months ago, which worked well at first, and actually had seemingly successful open heart surgery about a month ago.

Unfortunately while the surgery and initial recovery went well, she ran into some problems later on. The most significant problem seemed to be excessive fluid retention, which may have been caused by an underlying problem, instead of being related to the heart. She was back in the hospital at least a day before her situation got really bad, so there was at least some time when the doctors had a chance to intervene. While they ultimately not successful, I'm happy she had a chance to fight, both in the months of heart procedures and in the end. She was 90 years old.

We're happy that Nora's Great Grandma had a chance to meet her a few months back. While we're so sad she's no longer with us, back when we announced our pregnancy she was pessimistic about her health and if she'd be around to see Nora at all. It's good that her first heart valve procedure gave her a few extra months of time to meet her first great grandchild.

Thanksgiving was a bust, but we're looking forward to the Christmas holiday now. For a while we were thinking about adopting a dog or a third cat, and now that Cosette is alone we're pretty settled on another cat now. It's at least something new to look forward to.

Sunday, November 9, 2008

Goodbye Dear Leeloo

The past week has been a very rough one on us. On Monday, November 3rd, we were forced to say goodbye to our beloved cat Leeloo, after only knowing her for two years. After months of being sick to varying degrees, she developed an infection that her poor little body was unable to fight off. Our hearts are completely shattered. She was a huge part of our lives, she was my best friend, and she is very much missed.

A few months ago, back when we were doing a lot of renovation in the house to prepare for the coming baby, we noticed that Leeloo was occasionally not very hungry. She was still eating during the day but at certain meals she just didn't seem to have a huge appetite. We read a lot about how cats are particularly sensitive to stressing over changes around them, especially with their food dish location, we figured that might have been the problem. We moved the food to a more private location and all seemed fine. She was still acting like herself, begging for food, and usually gobbling it up.

Still, she had lost some weight and continued to do so. She was by no means a skinny kitty, but she used to be massive compared to Cosette, and at this point in time, Cosette was larger than her. We paid particular attention to make sure Leeloo was eating (thinking Cosette was stealing most of the food) but sure enough, she appeared to be eating ok. She was still acting just fine, running around, jumping all over things... just being herself.

A few weeks later, we decided to bring her to the vet because, despite still eating regularly, she was now quite thin. This was on a Monday. The vet drew some blood for tests and gave us the normal "I don't know what it could be therefore it's probably cancer" line.

On Tuesday afternoon we received the blood results, showing she did not have leukemia or anything else identifiable. We were told to bring her into the clinic's hospital for x-rays the following day.

We brought Leeloo in for x-rays on Wednesday, the same day Carrie went into labor. Her labor pains started early that morning but were still latent when it was time to drop Leeloo off, so she came with me to the vet hospital. By the afternoon, she was in active labor so I was fighting through rush-hour traffic to pick up Leeloo while Carrie was at home having contractions and the midwife was en route. I was told that the x-ray showed a mass on Leeloo's liver, potentially cancer, but they needed an ultrasound to get a better look. As luck would have it, the hospital's ultrasound machine and/or person was not around for three weeks, so I was given the option to wait (?!?) or go to another emergency facility for the ultrasound. I chose other facility.

On Thursday, after being up all night for Nora's birth, my mom and brother dropped Leeloo off for her ultrasound. The vet there thought the problem was probably a hairball in her stomach, not cancer! Well, after an ultrasound and subsequent endoscopic surgery, the surgeon actually removed a toy mouse from Leeloo's stomach! She apparently ate one of her $1 toy mice, causing all of this. Leeloo had a feeding tube inserted because she lost so much weight and her liver wasn't functioning properly.

After only a day or two of tube feeding, she was back to eating lots of food on her own. We were incredibly happy that she was making a fast recovery. That Friday, her liver tested ok and the tube was removed (she hated the tube). She was given some antibiotics for an infection she had on the skin near the tube.

It seemed the worst was over. Leeloo was getting back to herself, though still a bit slower she was doing a lot of the same things she always did. She was back to sleeping between my legs at night and laying across Carrie's lap during the day. It seemed all was going well.

Yet October 28th we noticed her appetite was waining again. I tried making her some special food she loves, we gave her some of the left over appetite stimulants we had, and I started giving her Nutrical because I was afraid her liver would get messed up again. She seemed to be eating ok again, but that only lasted a day or two. On Saturday she stopped wanting to eat much food at all, so I ran out to Petco to get a feeding syringe just to force her to eat something. We decided that something more serious was going on and would take her to the vet on Monday.

I fed her and she ate fairly easily from the tube on Saturday evening. But on Sunday morning, she had absolutely no interest in food. It was very difficult to get her to eat. I managed to get a good amount of food down, but when I put her back where she was sleeping I noticed she was breathing funny. I looked up to see if our vet had any Sunday hours. Carrie went over to her and noticed that her ears were really hot, so I took her temperature. 105.5F--way too hot for a cat! I contacted and immediately took her to the vet's off-hours emergency clinic.

The vet was very concerned by Leeloo's breathing and immediately ordered up an xray. It showed fluid in her chest cavity, pushing against her lungs and making it hard to breathe. The did a procedure to remove the fluid, so for a while Leeloo was breathing a bit better. They were pretty certain she had an infection, so they started her on antibiotics. I left her there for them to monitor and care for her and headed home.

If it wasn't bad already, it quickly got worse. The vet called within a hour or so to say that Leeloo had gone into respiratory distress. They had to do another procedure to remove the fluid and had the hard choice of giving her steroids for the breathing troubles (steroids are not good when there's an infection). They ended up also putting her into an oxygen chamber, but her condition wasn't getting much better.

At this point, it really hit us that this might not work out, but we were determined to give Leeloo every chance to pull through. Carrie, Nora, and I headed down to the vet that evening to see Leeloo and to talk to the vet again. We decided that we'd let her trying to get through the night in the oxygen chamber, and in the morning I'd transport her to the Garden State Vet Specialists for some more advanced care. We talked to the vet a bit later and was told that Leeloo got up to drink some water and peed a bit, which was encouraging.

The next morning, I picked up Leeloo around 6:30am. Unfortunately her condition was deteriorating. She had a few bouts of breathing problems overnight, and we had to take her out of the oxygen chamber to transport her. I rushed her down to GSVS, a 25 minute drive down the Parkway, and ran her in, immediately getting her back on oxygen.

A few minutes later, a vet came out to tell me that the prognosis was very bad, and seemed to imply that I should give up. Leeloo had been through so much the past two months, I wasn't going to give up on her. I gave the OK for them to continue to treat her as long as possible and set off for work.

On my way, I got a call saying that Leeloo was in respiratory distress and wanted to know if I wanted them to give her a breathing tube. Of course I did. A few minutes later they called to say she was crashing, and wanted to know if I wanted them to try reviving her. At that point, it really hit me. I debated whether it was worth any more discomfort to Leeloo, whether a bad outcome was already certain, and if dragging this out would only keep her around for a few more minutes of pain. She had been through so much so far, I owed it to her to have every opportunity to pull through, so I OKed resuscitation. I called Carrie to let her know what was going on...

Sitting at my desk, shortly after 9am, I got the call telling me that they were not successful. Our Leeloo wasn't able to be brought back. She was gone. This was the most horrible news I had ever heard.

I came home. It all seemed unreal, yet real enough to be incredibly upsetting. We had thought the worst was over, that she pulled through her toy-swallowing ordeal, but our optimism wasn't enough.

Carrie and I eventually gathered the strength to drive down to GSVS that afternoon to pick up Leeloo's body for burial. The vet told us that the fluid removed from Leeloo showed a septic infection, and was probably from the feeding tube. She said that it wasn't due to any mistakes made in her treatment, but that sometimes they get infections from the tubes. With the loss of bodyweight and the stress of the previous procedures, the infection was pretty well hidden from us, and when it finally started to get the best of Leeloo, it hit her extremely fast and hard. Her little body was simply too tired to fight it off, but she gave it her all.

The drive back home was strange. Carrie and I both felt that Leeloo was there with us, even though she was gone. There was a strange presence we felt with her body in the car with us, even though she was wrapped up and we didn't actually see her yet.

When we got home, I had to do what was necessary. I started digging for her burial. Three feet down, I finally finished and we could continue with saying goodbye.

We opened the box we took her home in and unwrapped her. She looked so sick, yet so peaceful. She was Leeloo but not herself. Our little kitty was just lying there, unable to see us and unable to feel us. We were so unprepared to deal with the reality that she was gone. We always imagined her living with us for 20+ years. She was Carrie's best buddy during the pregnancy and was there when Nora was born. We so expected Nora to grow up knowing Leeloo, and Leeloo knowing Nora. But the cold reality was that simply could not happen any more.

We let Cosette, Leeloo's biological sister, see her body. We don't know what's going on inside her mind, but we knew that she was looking for Leeloo, and we felt that this would help with whatever form of closure she might need. She came over and didn't seem to recognize Leeloo visually. She was sniffing around her feet, which smelled like some sort of sanitizer, but suddenly Cosette smelled near Leeloo's tail and reacted. She took another sniff, dropped her tail, and walked away. She knew. She knew her sister was gone and not coming back to play. We were actually surprised to get such a marked response, but are glad we decided to go that route. I would rather have Cosette need to deal with knowing Leeloo was gone than continue on walking around the house calling for her as she had been.

For her final few weeks, Leeloo loved sleeping inside Nora's stroller covered in a pink fleece blanket. We decided to wrap her in a piece of that blanket. We buried her along with some kibble that I had made (for when she felt better), some straws (that she used to love pulling out of the cabinet and walking around the house with), and a bag of catnip (remembering the time she grabbed and ran off with an open bag of it, getting it everywhere). We put her back into the cardboard carrier we picked her up in and proceeded outside.

There wasn't much to say, other than that we love you Leeloo and we miss you. We're so sorry that you had such a rough two months and we're sorry we weren't able to help you. We placed her in the hole that I dug, a hole placed in a location she used to see when looking out the kitchen window, and Carrie and Nora watched as I refilled the hole. Now she's at rest.

Carrie and I feel absolutely horrible. Not just because we miss her so much, but that we feel like we failed her. It was our responsibility to care for her, and somehow we managed to fail. Looking back, even as I write this, it seems obvious that something was wrong before we realized it, but such is the curse of hindsight. We cared so much for her, and at the time we did everything we possibly could to help her. We don't feel that we made any careless decisions. Any time something like this happens, one always says things like "if only I had done something sooner." But I don't feel that we made any ridiculous mistakes. Yes, we feel that we failed her because she's no longer with us, but we did everything possible to help her at the time. Each decision was made in her best interest at the time, knowing only what we knew then.

I miss Leeloo so much. Almost every night in the winter she used to sleep between my legs at night. In the mornings she used to wake me up with a kiss on my nose, and always used to beg me to feed her before I got into shower. For the two years she was here, I made almost all of her kibble and wet food by hand. I loved the way she'd come up and sit on me on the couch, gracing me with her presence. She'd sit on my lap, and if I had to pick her up to get up, she'd wait a few minutes to see if I'd return before taking the spot for herself. She used to come downstairs and watch me lift weights, just watching that and everything I would do. All that and more will be missed.

During the pregnancy, Leeloo was Carrie's shadow. She seemed incredibly aware of what was going on. She used to lay across her belly when Carrie was on the couch, and used to sleep on her hip at night. Leeloo was there to comfort her when she was feeling sick. We imagined her continuing to grow with Nora, but we're happy that she was able to be there for the birth and to meet Nora, even if only knowing her for a few weeks.

Leeloo's full name was Leeloo Dallas Multipass, named after Milla Jovovich's character in The Fifth Element.

Goodbye Leeloo. We love you. We miss you. We're sorry that we were only able to share two years with you, but we'd do it all over again in a heartbeat.

Wednesday, October 22, 2008

After 12 Days of Formula Feeding

Nora does not have galactosemia!!! Yay! Today we are back on breastmilk and off the stinky soy formula.

Back up two Fridays ago, October 10th, we received a call from our pediatrician telling us that the NJ Department of Health and Senior Services's newborn screening for Nora showed her as "presumptive positive" for galactosemia. We were told that the numbers were a bit "funny" because her galactose enzyme level was too low (they only screen for the GALT enzyme, there are actually two other enzymes necessary for galactose metabolism), but her accumulated level of galactose wasn't elevated, which it really should have been if her body wasn't breaking it down. The whole problem with galactosemics is that the unbroken down galactose accumulates and eventually poisons the body. So anyway, the pediatrician referred us to St. Peter's Department of Genetic Diseases for testing on the following Monday.

On that Monday, they take a blood and urine sample, tell us that the results should come in a week or less, and also told us her GALT level was 2.4 according to the state screening, where less than 3.5 was considered positive for galactosemia.

After a lot of bottles and simultaneous pumping (to keep up the breastmilk supply) Carrie called St Peters on Thursday to see if they could do anything to rush the test. They claimed they were going to see, but said it was pretty much in the lab's hands at this time.

So this past Monday comes and we get nothing from St. Peter's, Carrie called and left a message. We didn't get a call back from them.

Tuesday we got a call. The person at St. Peter's called the lab and they ran the wrong test. They needed us to bring Nora back in to take more blood! Their earliest appointment was Thursday. Right. That wasn't going to happen. I was away on a work retreat in Princeton and Carrie was at home with Nora. She directly told them: I'm coming today for you to take the blood and you are going to give me the results tomorrow.

Well, after some back and forth between the staff member and her supervisor, they managed to find time to take the blood yesterday and they overnighted the blood to the Mayo Clinic for the test. (Apparently the other lab that screwed up the first test has screwed things up before and actually had screwed another child's test up at the same time as well. As to why they continue to use that lab, I don't know. Maybe it's part of St. Peter's faith-based medical science.)

This morning the woman from St. Peter's confirmed that Mayo got the blood and would be running the test today. This afternoon, after calling them at 4:15pm, we were able to get them to analyze the results. Nora is fine! Her GALT level was 21! (18+ is considered completely normal.) Tomorrow we should get the genotyping results which will tell us if she's a carrier for one of the galactosemia variants, but that does not affect her body's ability to process galactose.

We're extremely happy. This is absolutely great news. A scare like this, even for a disorder that's fairly innocuous if treated, puts things into perspective. We cannot imagine what people have to go through when their children actually have a disorder that impacts their daily lives markedly more than what we experienced here. It's just insane.

So, in conclusion, we're extremely happy. We do have a few lingering questions:
  1. Why did the state screening show her levels so much lower than they actually are? Was the result simply wrong or has her enzyme production since gone up?
  2. Why did the pediatrician send us to the St. Peter's genetics department when they just took a blood and urine sample and sent it off for enzyme and sugar tests? They weren't going to do any genetic testing.
  3. Why do they continue to use a lab that screws things up? Why do they use a lab that takes over a week to make no progress when we've seen that, when sufficiently motivated, the results can be back in only a day.
  4. NJ Dept of Health and Senior Services, what exactly is your problem? I didn't mention this above, but yesterday we received a letter in the mail from them stating that our child tested positive for a genetic disease, included this completely useless flyer, and told us to see the pediatrician for a diagnostic test if we hadn't already. Classic galactosemics who are not treated are dead in two weeks from birth. I have to acknowledge that they did get their (erroneous) screening results to the pediatrician in less than a week, but this mailing to the parent is ridiculously unacceptable.
We're so happy that Nora is ok. And we're glad that this medical community exists to help us if things go wrong, but the level of incompetence we've experienced at all levels is just frustrating.

Saturday, October 18, 2008

Just hanging out


Not much is going on right now. Well, a lot is going on: eating, sleeping, crying (usually just Nora), and changing diapers! We're still waiting on the results of the follow-up galactosemia test, it'll be one week this Monday and unfortunately "about a week, maybe less" is the only information we got about how long it'll take.

Nora is taking her soy formula just fine now, but we're hoping that she'll be able to return (at least partially) to breastmilk soon. Her initial screening results showed low galactose enzyme (GALT) levels of 2.4 U/gBH but her accumulated galactose levels were normal. NJ considers this to be "presumptive positive" but this is only a screening, it's not diagnostic. At 2.4, Nora's GALT levels are not low enough for her to be considered a classic galactosemic: if anything, she has the duarte variant.

Duarte galactosemics only need to avoid galactose (dairy/breastmilk, some legumes and tomatoes) for the first year of life, and depending on the enzyme activity level, may only need to limit intake, not completely eliminate it. In NJ, the incidence of duarte is 1 in 4,000-5,000, and luckily the only known complications are cataracts, which is much better than what classical galactosemics have to deal with.

But regardless of how this turns out, Nora is absolutely fine. She's doing very well and is already having more and more awake time each day. She's looking around with more intent (looking directly at us and the cats) and keeps holding her head up a lot. She's a lot of work, and having this diagnosis hanging over our heads is just adding to the stress, but she's absolutely wonderful and we love having her around.

Monday, October 13, 2008

Lovebug

Called you for the first time yesterday
Finally found the missin' part of me
I felt so close but you were far away
Left me without anything to say

Now I'm speechless, over the edge, I'm just breathless
I never thought that I'd catch this Lovebug again
Hopeless, head over heels in the moment
I never thought that I'd get hit by this Lovebug again


I can't get your smile out of my mind
(I can't get you out of my mind)
I think about your eyes all the time
You're beautiful but you don't even try
(You don't even, don't even try)
Modesty is just so hard to find


Now I'm speechless, over the edge, I'm just breathless
I never thought that I'd catch this Lovebug again
Hopeless, head over heels in the moment
I never thought that I'd get hit by this Lovebug again

Kissed her for the first time yesterday
Everything I wished that it would be
Suddenly I forgot how to speak
Hopeless, breathless
Baby, can't you see?

Now I'm...

YEAH, OH

Now I'm speechless, over the edge, I'm just breathless
I never thought that I'd catch this Lovebug again
Now I'm hopeless, head over heels in the moment
I never thought that I'd get hit by this Lovebug again

Ohhh
Lovebug again

-- The Jonas Brothers, Lovebug

Saturday, October 11, 2008

On a much more serious note...

You really don't know what pain is or what it means to hurt until you receive news that something might be wrong with your child. We found out yesterday that Nora's newborn metabolic screen showed a marker for a genetic condition called galactosemia. I had to stop nursing her right away and we had to switch her to a soy formula.

I think my heart broke into ten thousand pieces, and then shattered into a thousand more. I couldn't even watch Chris give her the bottle. It has been a rough 24 hours coming to terms with the fact that for Nora, right now, the breast isn't the best - in fact, if she does have this condition, the breastmilk would be fatal. I've been crying my eyes out mourning the loss of our nursing relationship, and Chris has been, of course, a pillar of strength while I try to pull myself together and figure out how to come to terms with the fact that everything I learned and thought we would do is completely thrown out the window.

We go on Monday for genetic testing to see if she actually does have the condition. We won't know for 7-10 days what the outcome is. It's going to feel like an eternity. But in the interim, I'm going to keep pumping to keep my supply up as best I can, just in case it was a false positive and she can have breastmilk again.

If she does have the condition, it means she will be on formula and can never have anything with lactose. From the GANES website (http://www.galactosemia.com/galactosemia.html)

"Classic Galactosemia is a rare genetic metabolic disorder inherited through a gene from both parents, who are carriers. Normally, when a person consumes a product containing lactose, such as milk, cheese, or butter, the body breaks the lactose down into the sugars glucose and galactose. Glucose is used by the body for energy, while galactose is converted into usable glucose. In galactosemia, the enzyme that converts galactose into glucose is missing. An excess of galactose accumulates in the blood. The build-up of galactose is a poison to the body, and can cause serious complications such as enlarged liver, kidney failure, cataracts, and brain damage."

I would like to just throw this out there - you can never truly judge someone for what they do until you know their story. I always looked at women who fed their babies formula with digust. I couldn't understand why anyone would choose to give their baby an inferior product. I never took a moment to realize that maybe that woman doesn't have a choice. Maybe that formula is the best choice for her baby and for her family.

Similarly, after giving birth to Nora, I completely stopped looking down on women for getting epidurals. Previously, I thought those women were all weak - how could you do that and not want to experience childbirth? Well, now that I've experienced it for myself, I can totally see why -- and I cannot believe that I was so judgemental and short sighted.

Please keep Nora, Chris, and I in your thoughts.

Friday, October 10, 2008

Nora is now 8 days old! We cannot believe how fast this week went by. Monday started out with her first trip out to see the pediatrician.


Everything went well except the doctor felt she was a little too jaundiced. So we had to trek over to St. Peter's Hospital to have her bilirubin levels checked. If they were too high (over 17) then she would have to be admitted to the hospital and we really did not want that. After being so successful with the homebirth and having everything go so well, we didn't want anything to be wrong with our sweetie. Her level was just shy at 16.1, so we did have to go back the next day, Tuesday, to have them checked again. Luckily, they came back at 14.1, so we no longer had to go back for checks after that. Nora is looking much less yellow now and is doing fantastic!

We've sort of gotten our routine established now, and things are going pretty well! Nights really aren't that bad. Nora is a champion sleeper, just like her Mama! She sleeps for 2-4 hours at a time, even at night, which is really nice. She wakes to eat 2 or 3 times and then goes right back to sleep.

We've started using our cloth diapers and we absolutely LOVE them! They are truly impressive. It's funny, I actually really like using the Kissaluvs with the snaps and Chris likes the prefolds, which is the opposite of what people usually say! Usually Dads like the "easier" ones, but the way it's working out, I like the easier ones, and Chris likes the simplicity of the prefolds! Either way, they work wonderfully and I feel so much better using them instead of disposables that end up in landfills forever.

What else...?

Nora loves to sleep on Daddy's chest -- she is such a cuddle-bug! Here are some pics of her being her sweet self with Daddy...






We will update again soon!

Love,
Carrie, Chris, and Nora

Sunday, October 5, 2008

Pictures of our Princess!

Okay guys, get ready for cuteness overload! We got some great shots of Nora today, and couldn't wait to show her off! Here she is - 4 days old!



Here she is getting changed...








And this photo just melts my heart...

Saturday, October 4, 2008

Our Nora Caitlyn is here!


Nora Caitlyn was born on October 2nd, 2008 at 4:06 am! After 12 hours of very hard and challenging active labor and 51 minutes of pushing, Nora was born into my arms at home.





Labor began at 12:30 am (Tuesday night) with a few contractions that felt more regular and a bit stronger than normal. Luckily I was able to sleep most of the night, waking at 4:30 am. I woke Chris and gave him a heads up that this may be something. I still wasn't sure. I fell back asleep and we got up at 7 am b/c we had to take our cat Leeloo to the vet. I wasn't sure I was really in labor or if it was another false alarm, and I really wanted to see Leeloo off (we had to drop her off for x-rays). So, somehow, I was able to go along for the ride to the vet at 8 am. I had only a few contractions on the way there and while there, and thought maybe it was indeed a false alarm! They were still coming at about 9-10 minutes apart.

Once home, at around 11, the contractions started to intensify. By noon, I was timing them more diligently, and had to completely concentrate to get through them. I was sure at this point it was labor, but knew it was still early. The contractions were coming less than 5 minutes apart. Between 1 and 2 pm, we called the midwives answering service and the midwife on call, Pam, called us back shortly after. We told her what was going on and gave her a heads up that things were happening. It didn't take long for us to call her back and tell her she should probably start making her way up.

At around 3, Chris had to go pick up Leeloo. I was terrified to be left alone, but I really needed him to go pick her up. I knew it was still early and I was able to breathe and moan through the contractions enough while lying over my birth ball so I told him to go. I knew Pam would be there soon and that he would be back soon as well. Laboring alone wasn't as bad as I thought it would be. I was on my own for a little over an hour, but did well.

After that, things get a little fuzzy. Chris came back, Pam and Becca (her assistant and a student midwife) arrived and checked me. I was around 2 cm. I had a long way to go. The contractions were so incredibly intense, and baby Nora was OP (posterior) so my back literally felt like it was being hit with a sledge hammer with every one. It took a few hours for me to get to 5 cm, and I was changing positions as often as I could, from lying over my birth ball while on the bed, and sitting on the toilet. Chris was my rock through the whole labor, encouraging me through every single contraction, holding my hands, telling me how beautiful and strong I was. It was so hard. It was the most excruciatingly painful experience, really pushing me to the limits of my mental and physical strength.

I finally felt a little bit like pushing when the contractions were hitting at their strongest, so Pam and Becca said that if my body started pushing to go ahead and go with it. It didn't feel good. It felt so incredibly painful. After awhile of going like this, Pam decided she wanted to check me to make sure I was fully dilated and not pushing for nothing. I didn't want to be checked, I couldn't imagine how painful it was going to feel! But she put it to me this way - everything was incredibly painful right now. I didn't have a choice. I couldn't keep pushing against a cervix that wasn't open. So, she checked me and, indeed, I was only about 7-8 cm.

Becca and Pam told me to lay on my side, which seemed so uncomfortable at the time, so impossible, and they told me to just breathe through the contractions. Blow through them. Blow them away. Keep my voice low. Keep everything 'open' - I moaned the word open through every single contraction, clinging onto Chris for strength. I was starting to mentally break down. I felt completely helpless and like I was literally going to die. It was the hardest thing in the entire world not to push when the contractions hit; I had no idea what to do with my body or what to do with the pain. I mananged like this from 1 am to just after 3 am, when Pam decided to check me once again. I prepared myself for the worst...

But I was complete! 10 cm! Also, during that time, Nora had rotated herself from OP to LOA all by herself. They said I could finally push and bring my little girl into the world! They spun me around on the bed so my bottom was closer to the edge, and had me lay on my back propped up on pillows. Chris stayed behind me and I had has hands. Becca and Pam pushed my legs up towards my chest so I had some leverage to work against. With every contraction I just had to give it my all and push as hard as I could. Every push was bringing her further and further down. I wanted her out so bad. I could not imagine how much longer this could go on, I was completely exhausted. After 51 minutes of pushing, I felt her head sort of pop through, and Becca and Pam said, "Reach down and grab your baby!" I looked up and out she came, I caught her in my hands and pulled her up to my chest! She was absolutely gorgeous! Big blue eyes looking all around, barely a sound coming from her except for a few little whimper-y mewing noises! Chris and I were just completely overwhelemed with emotions and love for our little girl! She was so perfect and so wonderful - and after all that work, to see her face finally, and know she was alright was the most exhilarating feeling in the world.

The first few days have been such an experience for us. Nora is now 2 days old and is nursing pretty well. My body feels like it has been put through hell and back, and I had a few tears that needed stitches so I'm pretty sore. But Chris and I are so in love with our little girl, it makes the lack of sleep and juggling her back and forth completely worth it.

We will update again soon with more!

Friday, September 26, 2008

Beginning to feel like a watched pot that never boils...

Yeah, that pretty much sums it up.

Oh - I fixed it so anyone can leave comments. Sorry, I'm new to having a blog. Feel free to leave us comments now!!

Took a 38 week pic of the belly this week... thare she blows!



Technically, she's still got 3 weeks to make her appearance, but I've only got about an ounce of patience left. :-) No, no, it's not really that bad. Though it is much harder to not think about it all the time. The first 2 weeks of maternity leave were nice, quiet, calm, and relaxing. I got so much cleaning done, I got all the clothes washed, the room set up. I cleaned the kitchen every day, made dinner at night, and did it all again the next day.

Slowly as time goes by it's harder to keep up with the chores. I'm more tired than I was even a week ago. My body is just done.

But, there are definitely times when I know I will miss being pregnant. I will miss when her kicks and punches aren't our little secret anymore. I will miss the conversations I have with her when it's 3 am and I can't sleep. I'll miss saying, "Sorry, Baby!" when I accidentally bump my belly on the counter or with the refrigerator door...

Listening to my affirmations last night, one jumped out at me. My job right now is to just relax. I need to really work on that. Just relax. Take it one hour at a time. Don't rush this. Don't feel pressured to do anything that my body and my baby isn't ready to do. She will come when the time is right for her to be born.